Resources

Vascular Birthmarks: What Every Parent Should Know - an article by Dr Linda Rozell-Shannon. Also available version in Polish: Znamiona naczyniowe: Co Każdy Rodzic Powinien Wiedzieć

Vascular Birthmarks Foundation provides support and resources for children and adults born with hemangiomas, port wine stains, and other vascular birthmarks.

The Waner Children's Vascular Anomaly Foundation provides financial assistance, funds research on vascular birthmarks and helps to educate the medical community.

Very informative overview of Infantile hemangiomas:
http://www.chw.org/display/PPF/DocID/28482/router.asp

Blog describing similar case of hemangioma but on a girl's arm. The pictures there helped us to go through the ulceration as we knew from them what to expect:
http://www.sashasays.com/2008/05/13-weeks-14-weeks-17-weeks-18-weeks-19.html

Some other relevant blogs found on the internet:
http://www.porkchopsarah.blogspot.com/
http://lexihemangiomapropanolol.blogspot.com/
http://emilyshemangioma.blogspot.com/

Video which inspired us to make one about Julia's Hemangioma:


Another one about little girl treated with propranolol.:



In Polish: online forum about hemangiomas: http://www.naczyniaki.pl

1 comment:

  1. Hi! I am so glad my pictures of my daughter's ulceration were helpful to you! Your daughter's results after surgery look amazing! I am glad to see others putting info out there to help- when I was looking for info in 2006, there was not much to be found.

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